癌症病人治療旅程中的陪伴者～癌症資源中心服務

Cancer Patients' Partner in the Treatment Journey: the Cancer Resources Center

顏沛滋(Pei-Tzu Yen) ； 劉景萍(Ching-Ping Liu) ； 蘇籹銦(Nyu-Yin Su)

《腫瘤護理雜誌》 16卷增訂刊 (2016/10) Pp. 21-30

https://doi.org/10.3966/168395442016101603002

摘要

癌症治療是一條漫長又辛苦的旅程，病人在其中需面對癌症的襲擊和治療的重擔。病人從醫療團隊、親友、網路獲得許多訊息，但從中可能夾雜著錯誤的資訊，或無法理解資料的內容。此外，也有病人無法獲得足夠的資訊，導致缺乏資源支持。在癌症病人治療的歷程中，會面臨到許多問題，在生理層面有疾病症狀、治療副作用、營養、外觀改變等問題；心理社會層面則是歷經焦慮、憂鬱、擔心、害怕、悲傷等情緒困擾；再者因為癌症治療促使工作暫停或失業影響經濟收入，導致生活或治療經費的困難。另一方面，照顧者也因需面對病人疾病的變化、長期照顧病人的壓力、生活型態的改變等各種狀況，致使病家於疾病歷程中感到不可控制及不安。當病家進入陌生的醫療環境，也常常不知該如何取得協助，因此，國民健康署推動設立癌症資源中心，目的是為了讓癌症病友及家屬有一個快速、簡易、暢通的直接服務窗口與空間，設有醫療專業人員，結合醫療團隊、整合社會資源，提供病家專業的醫療諮詢、正確的癌症相關資訊、以及經濟補助或輔助用具的申請等服務。經由單一窗口使病人及其家屬能獲得有品質且符合需求的照顧。因篩檢的推廣及癌症治療的精進，各癌別存活期明顯延長，癌症資源中心未來可運用網路資源，建構完整的資訊系統，朝向社區資源及領航照顧系統的結合，並延伸服務至長期復健、復原、以及其他的支持。讓病人的生活不因疾病而感到孤立或挫折，本文以某一醫學中心癌症資源中心及案例進行說明，期望透過本文，讀者能了解癌症資源中心的實務運作與服務內容。

關鍵字

癌症 ； 癌症資源中心 ； 服務

並列摘要

Cancer treatment is a long and difficult journey, where cancer patients are forced to face the attacks of cancer and bear the burden of treatments. Patients receive information from medical teams, relatives, and the Internet. However, some of the information may not be accurate or could be confusing. As a result, some patients may have inadequate or inappropriate information, which would lead to loss of resources and consequently the receipt of poor support throughout the treatment and recovery. Patients often undergo and face many problems and challenges during treatments. Physically, they need to deal with symptoms, side effects, nutrition issues, changes of body image, lifestyle adjustments, and so on. Psycho-socially, they may suffer from emotional disturbances, such as anxiety, depression, worry, fear, and sadness. Moreover, some of the cancer treatments may cause patients to temporarily leave their jobs, or even lose their jobs, which will further aggravate or cause financial difficulties. At the same time, patients' care-givers also need to face the progression of patients' cancer disease diagnosis, the pressure of their long term care, and the changes of their own lifestyle as a result of patients' illness, which also may include dealing with uncontrollable and insecure emotional turmoil during the treatment journey. When the caretakers enter an unfamiliar medical environment, they often do not know how to ask for help. Accordingly, Taiwan Health Promotion Administration established the Cancer Resources Center (CRC) for cancer patients and their family members to have place to turn to for fast, simple, supportive, and straightforward cancer related resources. The center is staffed with medical professionals, who work with medical teams, integrate available social resources, and offer patients and families the professional consultations, the accurate information about various types of cancer, and the application for financial support and assistance, if needed, as well as the provision of medical equipment and supplies. Through a single access point, the CRC, cancer patients and their families are able to gain high-quality care that meets their needs. As the cancer survival have been prolonged obviously by the proactive cancer screening and the improvement of cancer treatments, in the near future, CRC may use Internet resources and platform to build an integrated information system. It will combine community resources and the navigation system of care to extend services to include long-term rehabilitation, the process and stages of recovery, and all other supporting resources. As their new partner on the cancer treatment journey, CRC will ease cancer patients' fear and frustration, and also mitigate isolation and loneliness that are brought about by the illness. The purpose of this paper is to describe what CRC is, how a medical center takes care of cancer patients to accomplish the goals of patient-centered service.

並列關鍵字

Cancer ； Cancer Resources Center ； Service

參考文獻

Alfano, C. M., Ganz, P. A., Rowland, J. H., & Hahn, E. E. (2012). Cancer survivorship and cancer rehabilitation: revital izing the link. Journal of Clinical Oncology, 30(9), 904-906. doi:10.1200/JCO.2011.37.1674

Charlenet, T., Santin, O., Mills, M., & Donnelly, M. (2013). Cancer survivors with self-reported late effects: Their health status, care needs and service utilization. Psycho-Oncology, 22(11), 2428-2435. doi: 10.1002/pon.3304

Gupta, A. A., Edelstein, K., Albert-Green, A., & D’Agostino, N. (2013). Assessing information and service needs of young adults with cancer at a single institution: the importance of information on cancer diagnosis, fertility preservation, diet, and exercise. Support Care Cancer, 21(9), 2477-2484. doi: 10.1007/s00520-013-1809-4

Ussher, J., Kirsten, L., Butow, P., & Sandoval, M. (2006). What do cancer support groups provide which other supportive relationships do not? The experience of peer support groups for people with cancer. Social Scence &i Medicine, 62(10), 2565-2576. doi:10.1016/j.socscimed.2005.10.034

Zafar, S. Y. (2016). Financial Toxicity of Cancer Care: It’s Time to Intervene. Journal of the National Cancer Institute, 108(5). doi: 10.1093/jnci/djv370