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口腔癌病患生活經驗

Understanding the Experiences of Oral Cancer Patients

摘要


口腔癌病患在罹癌及治療後,因器官及外觀的改變,經歷了生活上的變化,形成獨特的生活經驗。因此,本研究目的在於探討經歷手術、放射線及化學治療的口腔癌病患,此族群罹癌並經歷治療後的生活經驗。研究方法以描述性現象學研究法進行,資料收集以立意取樣方式,於中部某醫學中心口腔外科病房進行,並以半結構訪談指引進行一對一深入訪談,資料達飽和共訪談十六位口腔癌病患。資料分析採Colaizzi分析法,並進行嚴謹度的檢測,以能更精確獲知口腔癌病患主觀的生活經驗。研究結果共呈現四個主題:生理的不適感受、孤寂的社交生活、負向的情緒感受及正向的支持力量。此結果反應口腔癌病患在罹癌及治療後的生活經驗,可進一步作為照顧口腔癌病患的醫療照護團隊參考,以提供更具個別性及完整性的照護。

並列摘要


After being diagnosed with cancer and going through the treatments, patients with oral cancer would undergo tremendous changes in life as a result of the changes in their organs and appearance, which then would contribute to building up a unique life experience. This study is to explore the life experience of patients with oral cancer after they have gone through operations, radiation and chemotherapies. A descriptive phenomenological method and purposive sampling were used for the data collection. The study was conducted in the wards of oral surgery in a hospital in central Taiwan. The semi-structured face-to-face interview was used. Data saturation was reached after interviews were conducted with 16 oral cancer patients. Narratives were analyzed using the Colaizzi method. The rigor was also achieved for the patients' subjective life experience in a more precise manner. The results of this study revealed four themes: physical unpleasantness, loneliness in social life, negative emotional feelings, power of positive support. These results reflect to some degree the life experience of oral cancer patients after treatment could be further used as references for the medical and nursing teams to provide customized and complete health care.

參考文獻


Gellrich, N. C., Handschel, J., Holtmann, H., & Krüskemper, G. (2015). Oral cancer malnutri-tion impacts weight and quality of life. Nutri-ents, 7(4), 2145-2160. doi:10.3390/nu7042145
Charalambous, M., Paikousis, L., Lambrinou, E., Vomvas, D., ... Charalambous, A. (2018). The effect of the use of thyme honey in minimizing radiation - induced oral mucositis in head and neck cancer patients: A randomized controlled trial. European Journal of Oncology Nursing, 34, 89-97. doi:10.1016/j.ejon.2018.04.003
張育齊、張淑卿(2018).醫學知識之建構:以嚼食檳榔跟口腔癌關係為例.人文社會與醫療學刊,5,115-148。[Chang, Y. C., & Chang, S. C. (2018). The construction of medi-cal knowledge: A case based on the relationship between chewing betel nuts and oral cancer. Journal of Humanities, Social Sciences and Medicine, 5, 115-148.]
陳彥汝、賴裕和、陳淑卿(2014).頭頸癌存活者身體心像改變及其對工作狀態的衝擊.腫瘤護理雜誌,14(1),1-11。[Chen, Y. J., Lai, Y. H., & Chen, S. C. (2014). Body image changes and impacts on work status in survi-vors with head and neck cancer. The Journal of Oncology Nursing, 14(1), 1-11.]
陳淑卿(2007).口腔癌病患手術後之生活經驗.腫瘤護理雜誌,7(2),13-23。[Chen, S. C. (2007). Oral cancer patient’s life experiences after surgery. The Journal of Oncology Nurs-ing, 7(2), 13-23.]

被引用紀錄


陳淑梅、朱惠瑛、陳婉慈、蕭鳳佳(2022)。一位口腔癌病人接受經皮內視鏡胃造口之術後護理經驗高雄護理雜誌39(1),121-132。https://doi.org/10.6692/KJN.202204_39(1).0010
黃靜宜、陳繪竹、黃詩婷、王姮樺、鄭碧芬(2020)。一位初診斷口腔癌病人行廣泛切除手術之照護經驗高雄護理雜誌37(2),120-131。https://doi.org/10.6692/KJN.202008_37(2).0011
林妤蓉、胡靜文、嚴美華(2023)。運用安寧療護協助一位口腔癌末期病人善終之護理經驗領導護理24(3),91-107。https://doi.org/10.29494/LN.202309_24(3).0008

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