血液透析患者主要照顧者的負荷、需求及相關因素

An Exploratory Study of Primary Caregivers' Burdens, Needs, and Related Factors in Hemodialysis Patients

鍾玉珠(Yu-Chu Chung) ； 呂秋華(Chiu-Hua Lu)

《臺灣腎臟護理學會雜誌》 6卷1期 (2007/06) Pp. 23-36

摘要

The purpose of this study was to explore the burdens, needs, and related factors among primary caregivers while they were taking care of their hemodialysis patients. There were 101 questionnaires collected from those patients' primary caregivers in one hospital located in Northern Taiwan. The results of this study were as follows: Firstly, the mean for primary caregivers' burdens was 1.77, a medium burden level, and ”worrying about the patient's disease progression” was the major identified burden. In addition, the caregivers' burden showed significant differences according to whether they have chronic diseases, job changes for patient care, and foreign helpers or not. Also, the changes of health status, family relationship, kin interaction, and economics, among primary caregivers, before and during care of patients, yield significant differences in burden. Using a multiple stepwise regression analysis, health status, family relationship, Barthel's score revealed that, foreign helpers or not, and economic change were found to explain 48.8% of the variance of primary caregivers' burdens. Secondly, the mean for primary caregivers' needs was 1.87, a medium level of needs, and the best care from medical staffs was the most important need. Factors associated with caregivers' needs include the changes of health status and family relationship for primary caregivers before and during care of patients. Both health status and family relationship were found to explain 11.4% variance of primary caregivers' needs. Thirdly, the lower the Barthel's score, the higher the caregivers' burden. Also, there was a positive relationship between the caregivers' burdens and needs. Results of the study will be of assistance to health professionals in understanding the needs of caregivers who care for hemodialysis patients in Northern Taiwan, and will act as a reference for the future development of action plans and techniques for the holistic care of hemodialysis patients.

關鍵字

血液透析 ； 主要照顧者 ； 負荷 ； 需求

並列摘要

The purpose of this study was to explore the burdens, needs, and related factors among primary caregivers while they were taking care of their hemodialysis patients. There were 101 questionnaires collected from those patients' primary caregivers in one hospital located in Northern Taiwan. The results of this study were as follows: Firstly, the mean for primary caregivers' burdens was 1.77, a medium burden level, and ”worrying about the patient's disease progression” was the major identified burden. In addition, the caregivers' burden showed significant differences according to whether they have chronic diseases, job changes for patient care, and foreign helpers or not. Also, the changes of health status, family relationship, kin interaction, and economics, among primary caregivers, before and during care of patients, yield significant differences in burden. Using a multiple stepwise regression analysis, health status, family relationship, Barthel's score revealed that, foreign helpers or not, and economic change were found to explain 48.8% of the variance of primary caregivers' burdens. Secondly, the mean for primary caregivers' needs was 1.87, a medium level of needs, and the best care from medical staffs was the most important need. Factors associated with caregivers' needs include the changes of health status and family relationship for primary caregivers before and during care of patients. Both health status and family relationship were found to explain 11.4% variance of primary caregivers' needs. Thirdly, the lower the Barthel's score, the higher the caregivers' burden. Also, there was a positive relationship between the caregivers' burdens and needs. Results of the study will be of assistance to health professionals in understanding the needs of caregivers who care for hemodialysis patients in Northern Taiwan, and will act as a reference for the future development of action plans and techniques for the holistic care of hemodialysis patients.

並列關鍵字

hemodialysis ； primary caregiver ； burdens ； needs