臺灣地區發展遲緩兒童家庭生活衝擊預測因子之研究

The Study of Predictors of Family Life Impact in the Young Children with Developmental Disabilities

唐紀絜(Chi-Chieh Tang) ； 林宏熾(Hung-Chih Lin) ； 林金定(Jin-Ding Lin) ； 林美專(Mei-Chuan Lin) ； 簡璽如(Hsi-Ru Jean) ； 蔡桂芳(Kuei-Fang Tsai) ； 簡言軒(Yen-Hsuan Jean)

《身心障礙研究季刊》 5卷3期 (2007/09) Pp. 150-163

https://doi.org/10.30072/JDR.200709.0001

摘要

Background: A multivariate approach to the study of relationships between family life impact of the young children with developmental disability (DD) and parents/family/child demographic and service program variables has not examined in a large, multi-site sample in Taiwan. The purpose of this study was to describe family life impact, examine relationships between family life impact and demographic and service programs of early interventions, and identify predictors of family life impact in the young children with DD. Methods: Data were collected from nonrandom sample of 25 counties of Taiwan (27 Case Management and Early Intervention Centers of the young children with DD) (n=415). The well credit, reliable, and self-report instrument of Family Life Impact of young children with special need (FLI-YCSN) was used. The data obtained were statistically analysised by factor analysis, multivariate analysis of variance (MANOVA), Pearson’s correlation, canonical correlation, stepwise regression. Results: Family life impact can be classified into four dimensions: Family daily routine impact, Family emotion & problem solving impact, Family interaction & social impact, and Family self-development & career impact. The most impact factor was Family self-development & career. A significant difference on total family life impact was found among the family financial status, parent’s burden for maintaining family function, severity of disabilities, hour and inclusive early intervention, welfare, and credit for disability. Four out of 38 variables were significant predictors and explained 28.4% the variance of family life impact: the welfare of low income, persons of family, day care service of early intervention, and age of child with DD. Conclusions: Predictors of family life impact in the young children with DD were primarily welfare of low income. Knowledge of these factors provides (1) information to identify the high risk family and (2) direction for the development of family empowerment service program to attenuate the negative family life impact of the young children with DD.

關鍵字

發展遲緩兒童 ； 家庭生活衝擊 ； 高風險家庭評估

並列摘要

Background: A multivariate approach to the study of relationships between family life impact of the young children with developmental disability (DD) and parents/family/child demographic and service program variables has not examined in a large, multi-site sample in Taiwan. The purpose of this study was to describe family life impact, examine relationships between family life impact and demographic and service programs of early interventions, and identify predictors of family life impact in the young children with DD. Methods: Data were collected from nonrandom sample of 25 counties of Taiwan (27 Case Management and Early Intervention Centers of the young children with DD) (n=415). The well credit, reliable, and self-report instrument of Family Life Impact of young children with special need (FLI-YCSN) was used. The data obtained were statistically analysised by factor analysis, multivariate analysis of variance (MANOVA), Pearson’s correlation, canonical correlation, stepwise regression. Results: Family life impact can be classified into four dimensions: Family daily routine impact, Family emotion & problem solving impact, Family interaction & social impact, and Family self-development & career impact. The most impact factor was Family self-development & career. A significant difference on total family life impact was found among the family financial status, parent’s burden for maintaining family function, severity of disabilities, hour and inclusive early intervention, welfare, and credit for disability. Four out of 38 variables were significant predictors and explained 28.4% the variance of family life impact: the welfare of low income, persons of family, day care service of early intervention, and age of child with DD. Conclusions: Predictors of family life impact in the young children with DD were primarily welfare of low income. Knowledge of these factors provides (1) information to identify the high risk family and (2) direction for the development of family empowerment service program to attenuate the negative family life impact of the young children with DD.

並列關鍵字

Developmental disability ； family life impact ； high risk family ； young children

參考文獻

唐紀絜、林宏熾、林金定、陳英進、羅淑真、簡言軒(2005)。特殊幼兒家庭生活品質測量工具之發展－臺灣經驗。身心障礙研究。3，33-53。

唐紀絜(2005)。發展遲緩兒童家庭生活品質之研究(博士論文)。國立彰化師範大學特殊教育學系博士論文。

Ben-Zur, H.,Duvdevany, I.,Lury, L.(2005).Associations of social support and hardiness with mental health among mothers of adult children with intellectual disability.Journal of Intellectual Disability Research.49,54-62.

Captain, C.(1989).Family recovery from alcoholism.Nursing Clinics of North America.24(1),55-66.

Carpenter, B.(2000).Sustaining the family: Meeting the needs of families of children with disabilities.British Journal of Special Education.27,135-144.