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陪他走一段:自閉兒父親的生命敘說研究

Walking Beside Him: Narrative Research About the Life of an Autistic Child's Father

摘要


本研究探討父親一路陪伴與教養自閉兒的不易與需求,同時看見教育現場之問題與現象對自閉兒產生之影響,因此提出自閉兒父親如何堅持下去的元素、系統如何一起來協助自閉症孩子、家長渴望被同理之心理需求、重視校園霸凌現象、提升教師道德責任、療癒創傷症候群、善解自閉兒、成年後的就養安置等,因此,無論教育、醫療或社政單位,於提供自閉症父母相關服務前,若能了解父母需求,提供最適切的協助,相信將有助於增進服務推動之實質成效,也期待正視問題,就是解決的開始。

並列摘要


Through this research, we came to realize how difficult it is for a father to accompany an autistic child, as well as all the requirements needed by the father when teaching. Furthermore, our research revealed how the problems and phenomena in teaching environment affect autistic kids. Therefore, I present some ideas in this paper, including the elements helping the autistic child's father's advocacy, how the system assists the disabled, the mental needs that the parents wants to be understood, taking the bullying phenomenon in the school seriously, reinforcing the teachers' moral responsibilities, curing PTSD, understanding autistic kids well, recognizing the importance of how the disabled settle into adulthood after they have grown up, and other considerations. Thus, whether we are members of educational units, medical therapy units or social affairs units, if we can understand the needs of autistic children' parents before offering them services, then we can provide the most appropriate assistance for the parents. I believe that doing so will yield good results in the service that we are promoting. Facing the problem directly is the beginning of problem-solving.

參考文獻


涂妙如(2007)。以生態系統論評析國內近二十年來「父職角色」之研究脈絡。弘光學報,50,199-220。 doi: 10.6615/HAR.200705.50.15
Gray, D. E. (2006). Coping over time: the parents of children with autism. Journal of Intellectual Disability Research, 50(12), 970-976. doi: 10.1111/j.1365-2788.2006.00933.x
王大維(2000)。「父職參與」或「參與親職的父親」。應用心理研究,7,12-18。
王叢桂(2000)。促進參與父職因素探討。應用心理學,6,131-171。
史馥綺、王玉珍(2014)。最溫柔的戰士-一位自閉症者的父親之父職經驗敘說研究。國民教育,54(6),57-70。

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