一位脊髓前角細胞肌肉萎縮兒母親之壓力源與因應行為

本研究是探討一位脊髓前角細胞肌肉萎縮兒的母親在孩子患病與喪失孩子後壓力源及其因應行為。在照顧患孩其間，筆者將與個案自由會談、觀察的結果寫成敘述性的行為過程記錄18篇，再以內容分析法歸納。結果如下:母親所面臨壓力源為:疾病的衝擊;長期居家照顧之壓力;民間傳統觀念對罹病因認知之壓力;經濟壓力。其因應行為則包括:以情緒為中心之因應行為:否認、罪惡感、哀傷、焦慮、壓抑;以認知為中心之因應行為:比較、確認、合理化;以及以解決問題為中心之因應行為:改變自己的能力，接納現實增強自我，未來生育之計劃，尋求信仰支持，改變周圍環境。筆者在整個護理過程中，主動了解患孩母親之壓力源及情緒感受，並提供專業、個別之護理，以幫助個案達成成功的調適。

關鍵字

脊髓前角細胞冗萎縮；壓力源；因應行為

並列摘要

This study is to probe into the stressor and copying behavior of the mother who has a infantile spinal anterior horn cell muscular dystrophy baby while in the period of illness and after baby died .In care/of the sick baby 'talked with the mother freely and result of observation by auther could be presented in 18 chapters via demonstrated record of behaviored course; and conclued with content analysis. The result were: ＂The stress of mother: the shock of illness; the stress of long-term homecare ; the stress of tranditional concept of the etiologies of illness. The copying behavior inculode: the copying behavior in the center of mood : deny' guilty' sadness' anxiety and depression, the copying behavior in the center of recognition : comparison' confirmation' rationalization and the copying behavior in the center of solved problems: change the ability of itself' faced and enhanced itself' the bearing plan in the future- to look for the support of belief, change the surrounding enviroment. In the whole nursing course, the auther active to knew the stressor and mood of the sick baby's mother' and to provide professional 'personal nursing to help this mother to achive successful adjustment.＂