- 期刊
- OpenAccess
重度智能障礙者家庭主要照顧者的就業期待、困境與因應模式：以特教學校家長為例
The Employment Expectations, Difficulties Confronted and Coping Patterns of the Main Caregivers of Families with Severe or Profound Intellectual and Developmental Disabilities: Taking the Parents of Special Education School Students as an Example
摘要
本研究針對特殊教育學校重度以上智能障礙學生／畢業生家長（家庭主要照顧者）之就業困境與期待進行探討。除深入了解這些家長對就業的主體性需求與期待，也嘗試探討照顧服務工作對於這些智能障礙者家長平衡照顧與就業之可行性。本文針對十位學生家長進行深度訪談，同時結合需求觀點進行檢視後，發現與建議如下︰第一、就學期間與畢業後的智能障礙者家長面臨的就業困境有其共同性；第二、就業對照顧者的意義不僅於經濟，還有追求自主尊嚴與自我價值的內在需求；第三、照顧服務產業或可為智能障礙者家庭照顧者平衡照顧與就業的可行路徑。第四、從需求觀點的檢視，身心障礙福利政策應從「個人福祉」朝「家庭福祉」導向邁進。
並列摘要
This study aimed at parents (the family's primary caregivers) of students/graduates with severe or profound intellectual and developmental disabilities (SPIDD) in special education schools to explore their employment difficulties and expectations while their children were in school or after graduation. In addition to understanding these parents' subjective needs or expectations for employment, this study tries to explore the feasibility of care service work for these parents to balance care and employment. Conducting in-depth interviews with parents of 10 children with SPIDD, this study examined them from the perspective of the needs finding the result as follows. First, the employment difficulties faced by the parents of children with SPIDD during school and after graduation have their commonalities; Second, the significance of employment to caregivers is not only economic but also the intrinsic need to pursue self-dignity and self-worth; Third, the care service industry may be a workable path for family caregivers of the disabled to balance care and employment. Fourth, from the needs perspective, welfare policies for people with disabilities should be guided from "personal well-being" to "family well-being".
參考文獻
延伸閱讀
- 呂建成（2016）。家庭照顧者照顧智能障礙者之負荷研究〔碩士論文，朝陽科技大學〕。華藝線上圖書館。https://www.airitilibrary.com/Article/Detail?DocID=U0078-1108201714022701
- 黃韋榕（2022）。失智症者主要家庭照顧者自我效能及照顧負荷關係之研究〔碩士論文，中山醫學大學〕。華藝線上圖書館。https://doi.org/10.6834/csmu202200218
- 呂偉如、劉建良、曾元孚、張宏哲、廖文、黃秀梨（2021）。家庭為中心預立醫療照護諮商對失智者及家庭照顧者末期照護決策衝突之影響。護理雜誌，68(1)，30-42。https://doi.org/10.6224/JN.202102_68(1).06
- 郭俏怜（2008）。The Process of Professional Development of Employment Specialists for Disabled People—The View of Work Values, and Strategies for Coping with Working Predicament.〔碩士論文，國立暨南國際大學〕。華藝線上圖書館。https://doi.org/10.6837/NCNU.2008.00103
- 張正芬、陳秀芬、黃筱君（2014）。The Current Status and Future Parameters of Identification of Students with Special Education Needs at the Colleges and Universities。特殊教育季刊，(131)，1-12。https://doi.org/10.6217/SEQ.2014.131.01-12