一位極重度身心障礙手足的自我敘說探究

A Self-Narrative Inquiry about a Normal Sibling who has a Brother with Profound Disabilities

顏鏡如(Jing‐Ru Yan) ； 張美雲(Mei‐Yun Chang)

《障礙者理解學刊》 17卷2期 (2021/01) Pp. 26-48

https://doi.org/10.6513/JUID.202101_17(2).0002

摘要

本研究旨在了解研究者身為一位極重度身心障礙者正常手足之心理成長歷程，並從中探討兄長對研究者的正向影響，和影響研究者正向發展的因素。本研究採用自我敘說的研究方式，利用研究者的生命故事文本為最主要之資料蒐集，並輔以日記、作業、照片和錄影檔案等其他紀錄研究者生活方式的材料，再使類別敘說分析模式加以分析和整理，研究者得到以下結果：一、我的心理成長歷程分為困惑與退縮、矛盾與愧疚、壓力與叛逆、接受與自信等四個階段。二、兄長對我的正向影響：（一）給我學習的機會，從中不斷成長；（二）幫助我建立同理心，更能為他人著想；（三）運用自己的經歷，幫助更多際遇相同的家庭。三、兄長影響我正向發展之因素：（一）家庭經濟能力佳；（二）父母態度的接受與開放；（三）父母給我完整的愛；（四）宗教信仰的正向影響。

關鍵字

極重度身心障礙 ； 手足 ； 自我敘說

並列摘要

The purpose of the study is to understand the researcher herself, being a normal sibling of a brother with profound disabilities, and her progress through life development. Moreover, the study seeks for an in-depth exploration of the positive impact that his brother brought to her and investigated the factors that positively leads to her development. The Self-Narrative Inquiry method is applied as the research method in the study. The study uses the researcher's own life experience as the primary material, along with her journals, assignments, photos, video clips, and other records of her living styles. The conclusions are made as follows: 1. The process of my mental growth can be classified into four phases; Confusion and Withdrawing, Contradiction and Guiltiness, Stressed out and Rebellion, and Acceptance and Confidence. 2. The positive influences my brother has on me: (a) Provide me opportunities to learn and to grow continuously; (b) Help to cultivate my empathy and be more considerate toward others; (c) Utilize my personal experience to assist families under similar situations. 3. Factors that allow my brother influences my development positively: (a) Abundant financial capacity of the family; (b) The open-minded and accepting attitude of parents; (c) Parents love me with all their hearts; (d) The influence of religion and belief.

並列關鍵字

profound disabilities ； sibling ； self-narrative