器捐家屬的捐贈經驗--敘事分析的取徑

Organ donation experiences of donor relatives - A narrative research of 6 families.

林涵萱(Han-Hsuan Lin)

指導教授 ： 林東龍

高雄醫學大學/健康科學院/醫學社會學與社會工作學研究所/碩士(2012年)

https://doi.org/10.6832/KMU.2012.00019

摘要

長久以來，器官捐贈議題被置放於慈善和助人社會文化脈絡中討論。本研究從捐贈者家屬的觀點出發，主要探究器捐家屬的生命經驗與捐贈經驗之獨特性，器捐家屬的悲傷經驗與捐贈者之連結，器捐家屬如何建構自己的故事與如何置放器官捐贈於生命中的位置，以及器捐家屬的捐贈經驗與整體生命歷程之關連性。
本研究採敘事研究（Narrative Research）分析方法，以深度訪談法蒐集與整理6名器捐家屬的個人生命故事，藉由研究者亦身為器捐家屬以「互為主體」的關係產生互動，並從整體生命歷程來理解器捐家屬的捐贈經驗。本研究結果發現如下：
1. 腦死判定並非器捐家屬捐贈行為的決定因素，亦可從利他及利己脈絡來理解捐贈條件和捐贈行為；
2. 器捐家屬的悲傷反應是與捐贈者維持和再現生命連結的實作經驗；
3. 器捐家屬面臨喪親的經驗，與其個人過去生命經驗、醫療團隊的說明與處理方式、宗教信仰以及傳統社會文化等有關。
依據上述的研究結果，本研究針對醫療團隊、理解器捐家屬悲傷經驗的方式及未來的相關研究提出具體建議。

關鍵字

器官捐贈 ； 敘事分析 ； 生命經驗

並列摘要

Since long ago, the subject of organ donation was discussed by charity and helpful social cultural context. This research, from the organ donor families point of view, mainly to inquire into the unique of families’ grief experience and organ donation experience, the links between organ donation families’ experience and organ donor, organ donation families how to construct their own story and define organ donation in their life, and the correlation between the donation experience of donor families and the track of the whole life.
This research adopts narrative research analysis method. Collect and arrange the personal life story of six donor families by depth interview method, the researcher is organ donor family to produce the interaction of ‘intersubjectivity’, and realize organ families of donation experience with the track of whole life.
The results of this research are as follows:
1. Brain death is not only the determinants of organ donation families’ behavior, we could realize the condition and behavior of donation through the context of altruistic and egoistic.
2. Organ donation families’ grief is the practice experience to maintain and reappear the life links with organ donor.
3. Towards the bereavement , organ donation families’ experience is related to the past life, the way of medical team’s illustration and handling, religious belief and traditional social culture.
According the above findings, the research is aimed at making specific recommendations for medical team, the way of realizing the organ donation families’ grief experience and the related research in the future.

並列關鍵字

organ donation ； narrative research ； life experience

參考文獻

黃寶園、林世華（2007）。人格特質與社會支持對壓力反應歷程影響之研究：結合統合分析與結構方程模式二計量方法。國立臺灣師範大學教育心理與輔導學系教育心理學報，39(2)，263-294。

參考文獻：

中文部分

中華民國器官捐贈協會（2010）。器官捐贈宣導手冊，中華民國器官捐贈協會。

石崇良（2010）。推動台灣器官捐贈之挑戰與願景。北區器官勸募與生命末期臨終照護研討會，台北市。