思覺失調症患者手足的生命經驗初探

Exploring the sibling’s life experiences that who have a schizophrenia sibling.

張育瑛(YU-YING CHANG)

指導教授 ： 張菁芬

國立臺北大學/社會科學學院/社會工作學系/碩士(2016年)

摘要

本研究欲探討思覺失調症患者手足之生命經驗，期望能勾勒出當家庭面對思覺失調症的衝擊時，手足於其中的經驗、感受、想法與生存樣貌。
　　本研究採用滾雪球的方式尋找三位受訪者，三位受訪者皆為30-40歲之女性且生病手足已發病五年以上，另外三位皆在求學階段接觸過社會工作領域之學習。本研究運用Lieblich等人所提出的敘事研究的分析方法，進行「整體-內容」與「類別-內容」之分析，並於最後撰寫研究者對於自身的生命經驗之反思與成長。
　　研究發現當家中有人罹患思覺失調症時，會對整個家庭產生影響，手足須於家庭的變動中尋找自己的位置，在成長過程中手足易感到「孤獨」，對外是難以向他人言說自己的家庭，對內則是當父母心力投注在生病手足身上時易被忽略在一旁；隨著年紀的改變，父母逐漸賦予手足協助照顧生病手足的「期望」，但也牽連著手足自身願不願意「承擔」的議題，畢竟當選擇承擔時必然對未來的生活產生改變而有所猶豫，但三位皆表示不會丟下生病的手足不管，因為生病的手足是家人。此外，手足在尋覓伴侶或結婚對象時，會擔心對方或對方家人無法接受生病手足，以及憂慮有無遺傳上的問題，因此更難找到另一半。然而這樣的狀況背後隱含著社會的眼光，社會對於思覺失調症患者的接納度並不高，當家庭裡有人罹患精神疾病時，似乎就成了個較為不好的結婚對象，可能是個有問題的家庭或是遺傳上較有缺陷之家庭。
　　期望社會大眾與相關專業人員能透過三位的故事與後續的分析討論，更瞭解手足所面臨的處境、狀況或議題。

關鍵字

思覺失調症 ； 手足 ； 生命經驗 ； 敘事分析

並列摘要

The purpose of this study was to explore the sibling’s experiences of whom life with schizophrenia sibling. It hopes to outline the experience, feeling, thoughts and survival appearance when the family faced the impact of disease psychosis.
　　In this study, we used snowball sampling to conduct the research. We found three respondents, who are women in 30-40 years of age and have schizophrenia sibling for more than five years. And three respondents are in contact with the field of social work when they were in school. In this study, we used the analysis method from Lieblich to conduct "Overall - Content" and "Categories - Content" analysis. Also, the researcher reflects her own experience of life and growth in the end of the study.
　　The study found that when someone suffering from psychosis disorder in a family, it has impact on the entire family. Siblings must find their place in the family due to this change. During the growing process, siblings are easy to feel "lonely" because it is difficult to talk about their own family issues to others, and while the parents put more efforts on the illness sibling, they are easy to be ignored. With the change of age, parents expect the sibling assist to take care of the illness sibling gradually. However, it will incur another issue if the siblings is willing to take the responsibility. After all, they will hasitate whether to bear the burden or not because their future life will change due to this decision. However, three respondents all said that they would not abandon their sick sibling, because of illness limbs are family. In addition, when the siblings are looking for a partner or thinking about marriage, they worry about if the partner could accept the sick sibling, and concern about the genetic issue. Therefore, it is more difficult for them to find the life partner. However, their worries incur from the society's judge. The acceptance for psychosis patients is not high. When there is a family member who was suffering from mental illness, it seems that the person is not appropriate to marry. People may think there have families defects or genetic problems in the family.
　　We hope after the share and discussion of the three respondents in this study, public and related professionals can get better understanding of the situation, condition, or issue to know what the siblings face.

並列關鍵字

Schizophrenia ； Sibling ； Life experience ； Narrative analysis

參考文獻

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