台灣乾癬患者疾病適應之研究

摘要學號：M10561008 論文名稱：台灣乾癬患者疾病適應之研究總頁數：237 學校名稱：國立屏東科技大學系（所）別：社會工作學系畢業時間及摘要別：108 學年度第2 學期碩士學位論文摘要研究生：陳瀅舟指導教授：張麗玉論文摘要：本研究主要探討台灣乾癬患者疾病適應之歷程，目的在瞭解乾癬患者所經歷的生病經驗，及罹病過程所面對的困境以及疾病因應的內涵。本研究採質性研究方法，以立意取樣方式，研究對象以台灣東、西、南、北四區各取樣兩名之乾癬患者共8位，且研究對象皆經醫療診斷為乾癬患者及主觀認為已達乾癬適應狀態。以半結構訪談大綱，透過個別深度訪談進行資料蒐集及逐字稿分析，以瞭解台灣乾癬患者疾病適應之歷程。本研究發現，乾癬患者最終能以正面態度詮釋生病經驗，而在乾癬罹病過程所面對的困境有：1. 乾癬疾病無法根治且引發皮膚病灶處極度搔癢、龜裂及滲血等不適、2. 乾癬紅斑脫屑皮膚病灶影響患者心理負面感受、3. 乾癬紅斑脫屑皮膚病灶易導致患者社會退縮及孤立、4. 外界誤解及歧視易導致乾癬患者的自我價值感低落、5. 乾癬患者因著乾癬疾病影響就業選擇及權益等五項；而乾癬患者因應困境的方式有三大項：1. 配合乾癬疾病相關治療處遇的介入、2. 提升自我效能及自我照顧能力、3提升正向的家庭支持系統、4.重建正向的社會支持系統；進而讓乾癬患者達到生理、心理、社會、靈性及職業的適應。最後從研究結果及發現提出對乾癬患者、患者家屬、醫療專業相關助人工作者、社會大眾、研究及政策等具體建議。關鍵字質性研究、乾癬患者、疾病適應

關鍵字

質性研究；乾癬患者；疾病適應

並列摘要

Abstract Student ID: M10561008 Thesis of Title: Research on the Disease Adaptation of Psoriasis Patients in Taiwan Total Pages: 237 Name of Institute: National Pingtung University of Science and Technology Department/Graduate Institute: Department of Social Work Date of Graduation: July 03, 2020 Degree Conferred: Master Name of Student: CHEN, YING-ZHOU Advisor: CHANG, LI-YU Thesis Abstract: The main objective of this study was to investigate the disease adaptation process of patient of psoriasis in Taiwan, and it was also to understand the disease experience encountered by the patient of psoriasis, and the dilemma faced by the patient during the disease process, and finally, the disease adaptation content. In this study, qualitative research method was adopted, and purposive sampling method was also taken too, meanwhile, the research targets include two psoriasis patients respectively from four areas of eastern, western, southern and norther Taiwan; meanwhile, all the research targets were diagnosed as psoriasis patients by physicians and have been thought to reach psoriasis adaptation status subjectively. Moreover, semi-structured interview guide was used, and individual in-depth interview was used to conduct data collection and word-by-word analysis, consequently, the disease adaptation process of patient of psoriasis in Taiwan can be realized. In this study, it was found that patient of psoriasis can eventually explain the disease experience in very positive way, and dilemma faced in the psoriasis disease process included: 1. Psoriasis disease cannot be cured permanently, meanwhile, the condition of the dermatitis site was very itchy, or sometimes cracked and even blood oozing, etc., 2. Desquamation and red spot of psoriasis skin could bring negative feeling to the patient, 3. Desquamation and red spot of psoriasis skin could lead to the withdrawal and exclusion of the patient from the society, 4. External misunderstandings and discrimination can easily lead to low self-worth in patients with psoriasis, 5. The psoriasis disease had affected psoriasis patients for their employment selection and right; meanwhile, there were three major ways for the psoriasis patients to cope with the dilemma: 1. Cooperate with the interference of related therapeutic ways for psoriasis disease, 2. Enhance self-efficacy and self-caring capabilities, 3. Enhance positive family support system, 4. Re-construct positive social support system; hopefully, physiological, psychological, social, spiritual and professional adaptation can be achieved by psoriasis patients. Finally, the research results can be used as good suggestions to psoriasis patients, family members of psoriasis patients, social workers of related medical professions, the general public, as well as future researches and policies. Keywords: qualitative research、psoriasis patient、disease adaptation