高位頸髓損傷者輔助科技延伸服務長期探索之旅

A Long-term Study of Assistive Technology Extended Services for a Person with Upper Cervical Cord Injury

林淑玟(Shu-Wen Lin) ； 羅錦興(Ching-Hsing Luo)

《特殊教育研究學刊》 35卷3期 (2010/11) Pp. 51-76

https://doi.org/10.6172/BSE201011.3503003

摘要

年僅18歲的個案在1998年因跳水意外受傷，造成頸髓損傷且四肢癱瘓。對極重度肢體障礙的他來說，個別化電腦科技輔具有何幫助？除科技輔具外，他還需要什麼？一個結合研發科技輔具與提供輔助科技延伸服務的跨專業團隊，能為他做些什麼？這些科技輔具與延伸服務（含心理、社會與職業重建），能為其生命帶來何種改變？本文主要採個案研究與行動研究法，探討跨專業團隊自2001年4月起，為這位高位頸髓損傷者，提供近九年長期介入與互動過程中，發現的議題及啟示。研究發現，在提供長期輔助科技延伸服務後，對其社會人際互動、接納傷殘與居家就業上，都有正面成效。然而，生命旅程尚未結束，這些正向功效，能否在其後續人生中持續發揮影響，仍有待時間給予答案。

關鍵字

長期介入成果 ； 高位頸髓損傷 ； 科技輔具 ； 跨專業輔助科技團隊 ； 輔助科技延伸服務

並列摘要

This study focused on a young man who had suffered an upper cervical cord (C1-C6) injury from a diving accident in 1998, when he was 18, rendering him a quadriplegic. Researchers aimed to explore how much help customized computer assistive technology devices had been to this young man, and what outcomes had been generated for him by a transdisciplinary assistive technology team integrating high-tech device development and provisions of assistive technology extended services (ATES), including psychological, social and vocational rehabilitation. This case study and action research also aimed to discover what changes the young man had experienced in his life as a result of long-term interventions initiated in January 2001, and to address issues faced by his ATES team over the past nine years. The results revealed that the young man had had overall positive effects in terms of social interaction, acceptance of impairment, and telework (e-work) after receiving the ATES.

並列關鍵字

Assistive Technology Extended Services ； High-tech devices ； Long-term Interventions and Outcomes ； Transdisciplinary Assistive Technology Team ； Upper Cervical Cord Injury

參考文獻

王文科、王智弘(2009)。教育研究法。臺北:五南。

吳美枝譯、何禮恩譯、McNiff, J.、Lomax, P.、Whitehead, J.(2002)。行動研究：生活實踐家的研究錦囊。嘉義:濤石文化。

吳耀庭、曾智宏、吳明順、陳佳莉、施啟明、畢柳鶯(2004)。高位頸髓損傷患者輔具使用與日常生活功能調查。臺灣復健醫學雜誌。32(1)，19-24。

林淑玟(2007)。整合殘障概念模式之初探。特殊教育與復健學報。17，21-46。

林淑玟、羅錦興、陳世中、謝明哲、吳崇民、黃璨珣(2008)。跨專業輔助科技整合服務團隊之運作。臺南:國立臺南大學特殊教育中心。