安寧病房中家屬照顧者的資訊需求

Information Needs of Family Caregivers in a Palliative Care Unit

林維君(Wei-Chun Lin) ； 黃文聰(Wen-Tsung Huang) ； 廖純真(Chun-Jen Liao) ； 謝玉娟(Yu-Chung Hsieh) ； 邱智鈴(Ge-Lin Chiu) ； 夏德瑛(De-Yin Hsia) ； 曹朝榮(Chao-Jung Tsao)

《安寧療護雜誌》 8卷2期 (2003/05) Pp. 161-174

https://doi.org/10.6537/TJHPC.2003.8(2).4

摘要

本研究探討末期病人在安寧病房住院期間，身為照顧者的家屬為因應各種疾病末期及住院適應等情況所產生的資訊需求。本研究以研究者自編問卷進行調查研究，以六個資訊需求的範疇：照顧工作、與病人疾病相關者、社會福利及其他協助、心理社會層面問題、臨終準備與安寧療護、宗教與靈性的解釋，分別探討目前安寧病房中家屬照顧者對各範疇資訊在重要性及滿意度上的感受程度，以及是否仍有未滿足的資訊需求，
研究結果發現，家屬照顧者認為最重要的資訊範疇為與疾病相關的資訊，而滿意度最高的是照顧工作相關資訊。而照顧者的資訊需求，即覺得重要但不滿意的資訊，以如何處理心理社會層面的問題為主，尤其有四成以上的照顧者反應出有如何處理病患情緒困擾的資訊需求。
本研究結果可提供安寧療護團隊設計更有效的衛教方案，並提供家屬照顧者在病人住院期間更適切的資訊，尤其在心理社會層面的資訊提供上，是目前台灣安寧療護服務亟待加強的一環。

關鍵字

資訊需求 ； 家屬照顧者 ； 安寧療護

並列摘要

This study explored the information needs of family caregivers of terminally ill patients during the hospitalization. Previous studies showed that information was one of the most important needs of family caregivers of terminal cancer patients, and it was also a coping strategy against the impact coming with cancer. This cross-sectional survey used a structured questionnaire to identify six domains of information needs of family caregivers in the palliative care units, including caregiving-related, disease-related, social welfare, psychosocial, palliative-care-related, spiritual and religious, and explore how family caregivers evaluate the importance, satisfaction, and needs of these information domains.
This study indicated that the most important information was disease-related. The most satisfied information was cargiving-related, and the least was psychosocial information. Over 40% of these caregivers responded that they need to know how to deal with patients' emotional disturbance.
The results of this study support the importance of information provision in hospice and suggest the need to move toward development of psychosocial service in palliative care in Taiwan.

並列關鍵字

information needs ； family caregiver ； palliative care