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研究生: 丁雨婷
Ding, Yu-Ting
論文名稱: 智能障礙者雙老家庭之心盛典範
Flourishing Stories of the Aging Families of Adults with Intellectual Disabilities
指導教授: 姜義村
Chiang, I-Tsun
學位類別: 碩士
Master
系所名稱: 復健諮商研究所
Graduate Institute of Rehabilitation Counseling
論文出版年: 2017
畢業學年度: 105
語文別: 中文
論文頁數: 124
中文關鍵詞: 智能障礙者雙老家庭心盛質性研究
英文關鍵詞: the aging families of adults with intellectual disabilities, flourishing, qualitative research
DOI URL: https://doi.org/10.6345/NTNU202202401
論文種類: 學術論文
相關次數: 點閱:162下載:38
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  • 進入千禧年以來,智能障礙者雙老家庭逐漸為實務界和學術界所關注。與此同時,心盛理論也因應正向心理學領域的發展而興起。回顧相關文獻,發現已有研究中,較無從積極角度來思考智能障礙者雙老家庭的正向意義,大多是從需求的視角來探討智能障礙者雙老家庭的困境和挑戰,並依研究結果提出了改善建議。故本研究欲以心盛理論為架構,期望透過本研究來達成以下目的:1)瞭解智能障礙者雙老家庭的真實生活樣貌;2)瞭解智能障礙者雙老家庭的積極力量來源;3)瞭解智能障礙者雙老家庭面臨的挑戰和因應方式。
    本研究採質性研究的個案研究法,深度訪談了三戶智能障礙者雙老家庭。研究發現這三戶智能障礙者雙老家庭:1)家庭作息規律且穩定,維持一定的健康;2)照顧者擁有積極情緒,強勁的復原力;3)因為血緣之愛投入著,有明確的生活意義與目的等特質;4)充分運用現有的社會資源(正式或非正式資源),明確未來雙老規劃或願意著手規劃;5)積極參與社會活動,擁有良好的社會互動、積極正向的人際關係和成就感。本研究總結發現若要實現智能障礙者雙老家庭的心盛,則需要有一個前提和三個元素:一個前提是照顧者個人是心盛的,即滿足PERMA五個因子;三個元素分別是人格特質、社會資源、社會互動,彼此之間環環相扣,並且發展出智能障礙者雙老家庭心盛元素圖。根據該圖,對智能障礙者的家庭照顧者、身心障礙權益推動者、政府正式服務提供者提出相關建議以參考。

    Since the beginning of the millennium, the aging families of children with intellectual disability have got much attention both in the field of practice and academia. At the same time, flourishing have been rising with the development of positive psychology. In the review of the relevant literature, it is discovered that little research has been done in a positive prospective to reflect on the positive meaning of the flourishing aging families of children with intellectual disability. However, most of the researchers have explored the difficulties and challenges of aging families of children with intellectual disability from perspective of demand, and put forward improvement suggestion according to the research result. Therefore, the purpose of this study is to combine the theory of flourishing to achieve the following objectives: 1) to comprehend the real life of aging families of children with intellectual disability; 2) comprehend the active source of strength of the flourishing aging families of children with intellectual disability; 3) comprehend the challenges and copying strategies of the flourishing aging families of children with intellectual disability.
    In this study, case study of qualitative research is conducted, and three aging families of children with intellectual disability were interviewed in depth. We found that the characteristics of aging families of children with intellectual disability include: 1)They have regular and structural families routines and health maintenance; 2)Caregivers have positive emotion and strong resilience; 3)The input of them is out of love and blood ties, and families have a clear meaning and purposes of life; 4)The existing social resources (formal or informal) is made of full use, and the future aging placement or willing is planned by families; 5)They actively participate in social activities, maintaining good social interaction, positive relationship and accomplishment. This study concluded that if we want to realize the flourishing of the aging families of adults with intellectual disabilities, it is necessary to meet a premise and the three elements. The premise is that the caregivers are flourishing, who can meet the PERMA. Three elements are personality traits, social resources and social interaction. Accordingly, the study has developed a flourishing factor pattern of aging families of adults with intellectual disability, and according to it, related suggestions have been put forward for reference for caregivers of families with aging people with intellectual disability, disability rights promoters and formal service providers of government.

    第一章 緒論 1 第一節 研究背景與動機 5 第二節 研究目的與問題 7 第三節 重要名詞釋義 8 第四節 本研究的限制 10 第二章 文獻探討 11 第一節 智能障礙者雙老家庭的狀況 11 第二節 「心盛」的相關研究 22 第三章 研究方法 26 第一節 研究參與者之選擇 27 第二節 研究者的立場與角色 29 第三節 研究工具 31 第四節 研究步驟 33 第五節 資料蒐集與分析 35 第六節 研究信實度 37 第七節 研究倫理 39 第四章 研究結果:有苦更有甜的喜樂人生 41 第一節 為母則強:媽媽陪你將世界玩透透 43 第二節 「你是我的寶貝」:阿嬤教你把歌兒唱溜溜 57 第三節 「我們家的皇帝」:爸媽帶你把美食嚐夠夠 68 第四節 雙老人生顯心盛 83 第五章 討論與建議:智能障礙者雙老家庭如何走向心盛 88 第一節 幸福是什麼? 88 第二節 智能障礙者雙老家庭的「心盛」生活 90 第三節 展望:「心盛」之花常開 97 第四節 反思中前行 100 參考文獻 103 附錄 117 附錄一 研究邀請函 117 附錄二 研究參與同意書 118 附錄三 主要照顧者訪談大綱 120 附錄四 訪談札記 122 附錄五 研究檢核函(一) 123 研究檢核函(二) 124 圖 目 次 圖5-1 智能障礙者雙老家庭心盛元素 96 表 目 次 表2-1 智能障礙者雙老家庭的相關研究彙整(2004-2016) 16 表2-2 智能障礙者雙老家庭權益保障相關規定整理 19 表3-1 三戶智能障礙者雙老家庭資料 28 表5-1 臺灣身心障礙福利機構2017年第一季度服務狀況 99

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