身心障礙機構癲癇控制分級管理機制建立與成效評估之研究

蔡春足

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P117 - 133

Health & Medical Care > Internal Medicine
Social Sciences > Psychology
Social Sciences > Education

DOI： 10.30072/JDR

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身心障礙機構癲癇控制分級管理機制建立與成效評估之研究

Study of Graded Management on Epilepsy Control Measures' Establishment and Effectiveness in the Disability Institution

蔡春足(Chun-Tsu Tsai)

身心障礙研究季刊； 14卷2期 (2016 / 06 / 01) ， P117 - 133

繁體中文

身心障礙機構；癲癇控制；分級管理； Disability institution ； epilepsy control ； graded management

Abstract │ Reference (16) │ Altmetrics

Abstract 〈TOP〉

Parallel Abstract 〈TOP〉

The neurological disorder and epilepsy are the major health problems for people with mental/intellectual disability. One reason for the bad effectiveness of treatment is because the disease is difficult to be detected. Most studies focus on the issues about the ＂treatments＂ and the ＂drug developments＂ of epilepsy and only few emphasize the control and management of epilepsy in the institutions. This study aims to analyze the establishment of ＂Epilepsy control grading management＂ and assess the effectiveness of the implemented measures. Methods: In this study, we used both qualitative and case study research methods. The data analyzed comes from the participating care institutions between 2009 and 2015 in order to evaluate the results of the implemented measures. Results: (1) the measures have been effective in improving epilepsy control according to the changes of the seizure attacks and grading assessment numbers. (2) the patterns of seizure attacks differ, their onsets are not easily controlled, and threatening risks may be caused by epilepticus. (3) immediately mobilizing emergency manpower resources when seizures occur in care institutions are necessary; employees that dealing with the attacks experience various stress factors, and the skills for dealing with seizure attacks need to be accumulated through experiences. (4) care institutions face many challenges related to seizures: the manpower ratio needed for nighttime care is high, the psychological stress related to caring for epileptic cases are high; the willingness to provide emergency aid at hospitals is low; and parental support is limited. (5) disabled individuals experience many difficulties with regard to medical care, such as limitations on the facilities and equipment, self-awareness, and communication issues. Conclusions and suggest: that the epilepsy control grading management measures have had a definite effect on seizure control for disabled individuals, and seizure data provide positive support for the institutional staff and physicians regarding communication with parents, as well as medical follow-ups. Practicing such measures can improve epileptic disorders, as well as the quality of life of people with disabilities.

Reference ( 16 ) 〈TOP〉

林金定、嚴嘉楓、李志偉、吳佳玲(2003)。智能障礙者醫療需求評估與就醫障礙之分析。台灣衛誌，22，108-117。
連結：
林金定、嚴嘉楓、李志偉、吳佳玲、卓妙如、羅慶徽、賴朝英(2003)。智能障礙合併癲癇及醫療利用分析。身心障礙研究，1，65-77。
連結：
嚴嘉楓、林金定、羅慶徽、卓妙如、徐尚為、唐紀絜、吳佳玲(2006)。機構內智能障礙者合併特殊疾病之健康管理制度分析。身心障礙研究，4，1-17。
連結：
Jacoby, A. G.,Smith, D.,Dewey, M.,Chadwick, D.(1993).Measuring The impact of epilepsy: The development of a novel scale.Epilepsy Research,16,83-88.
李幸娟(2006)。碩士論文(碩士論文)。嘉義市，中正大學社會福利所。

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