母血篩檢唐氏症陽性反應的孕婦面對羊膜穿刺之決策經驗

The Decision Making Experiences on Amniocentesis of Pregnant Women with Positive Results on Maternal Serum Screening for Down Syndrome

黎小娟(H. J. Li) ； 李從業(T. Y. Lee)

《護理雜誌》 45卷3期 (1998/06) Pp. 51-64

https://doi.org/10.6224/JN.45.3.51

摘要

唐氏症是最常發生的體染色體異常，也是最常見的原因。本研究爲現象學研究，旨在探討母血篩檢唐氏症陽性反應對孕婦的意義，以及孕婦在面對羊膜穿刺時的決策經驗。共訪談了十七位母血篩檢唐氏症陽性反應的孕婦，以開放、無結構、不引導的方式進行訪談，所有內容均予以錄音，並以Giorgi的現象學方法來分析所收集到的資料。結果萃取出六個主要的概念：篩檢結果的迷思、尋求行爲、母性任務的達成、抉擇的攏、傳統女性的桎梏、傳統命運觀。而護理人員經由深入了解這些孕婦的生活經驗，則可依照個案的需求，來設計適當的遺傳諮詢，並提供孕婦適當的支持。

關鍵字

母血篩檢唐氏症 ； 現象學研究 ； 意義 ； 生活經驗

並列摘要

Down syndrome is the most common cause of autosomal abnormality and mental retardation. The main purpose of this phenomenological research was to examine the meaning to pregnant women of positive results on maternal serum screening for Down syndrome, and their experiences of decision making on amniocentesis. The researcher interviewed seventeen pregnant women who showed positive results on maternal serum screening for Down syndrome. The participants were interviewed and audiotaped in an open-ended, non- structured and unguided way. Giorgi’s qualitative method of phenomenology was used to analyze collected data. The major findings of this research were that six essential concepts emerged as follows: (1) myths of screening result, (2) seeking behavior, (3) attainment of maternal tasks, (4) swing of decision making, (5) traditional women’s shackles, (6) traditional concept of fate. Thoroughly understanding the lived experiences of these pregnant women can enable nurses to design appropriate genetic counseling according to clients’ needs.

並列關鍵字

maternal serum screening for Down syndrome ； phenomenological research ； meaning ； lived experiences