以資訊世界圖研究法探究自閉症兒童主要照顧者之資訊行為

本研究以資訊世界圖研究法，訪談17位自閉症兒童主要照顧者，發現其資訊需求主要為醫療資訊需求，其次為親職資訊與教育資訊需求，再次為照顧者心理支持方面的資訊需求與自閉症兒童的各種生活資訊需求；照顧者資訊世界中的人、物與地點具有以人為起點、虛實往返及多重轉介關係；唯有備具足夠自信且處於穩定狀態之照顧者，有餘力進行資訊分享，而其資訊分享常發生在照顧者長期且定期拜訪的地點；照顧者為利己目的而分享資訊之對象多為專業人士或親友，利他目的之分享對象則多為社群媒體上的其他照顧者。根據研究發現，本研究分別針對圖書資訊、醫療、教育及社會福利單位提出實務建議。

關鍵字

自閉症；主要照顧者；資訊行為；資訊世界圖研究法

並列摘要

This study aims to explore the information needs of primary caregivers of children with autism spectrum disorder (ASD) when caring for the autistic children, and to identify the relationships among people, items, and places in the information world, especially the information sharing behavior. Semi-structured in-depth interviews were conducted with the information world mapping visual-elicitation method. Seventeen primary caregivers of children with autism between 6 and 12 years old were interviewed. The current study found that medical information needs, parenting information needs, education information needs, moral support information needs, and everyday-life information needs are the five major information needs of the primary caregivers of children with ASD. Caregivers tend to obtain information through referrals from and among different people, items and places according to different information needs. The typical relationships among people, items, and places include starting from consulting people, back-and-forth between physical and virtual locations, and multiple referrals. As to information sharing, caregivers would only have time to share information with others when having sufficient self-confidence and being in a stable state. And information sharing is more likely to occur somewhere caregivers stay for a long time or visit regularly. While caregivers share information with professionals and families for self-interest, they share information with other caregivers on social media for altruistic purposes. Based on the findings of the current study, practical suggestions for library and information institutions, medical institutions, education institutions, and social welfare institutions are provided.

並列關鍵字

Autism spectrum disorder ； Primary caregiver ； Information behavior ； Information world mapping

參考文獻

吳智琪（2019）。以視覺敘說取向探究臺灣赴日留學生的日常生活資訊世界圖〔未出版之碩士論文〕。國立臺灣大學圖書資訊學研究所。https://doi.org/10.6342/NTU201901690 【Wu, Chih-Chi (2019). Everyday life information world mapping of Taiwanese international students in Japan: A visual narrative inquiry approach[Unpublished master’s thesis]. Graduate Institute of Library and Information Science, National Taiwan University. https://doi.org/10.6342/NTU201901690 (in Chinese)】

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以資訊世界圖研究法探究自閉症兒童主要照顧者之資訊行為

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