AIDS Storm: The Stigma of HIV/AIDS Means to the Client and the Public

愛滋風暴-愛滋之烙印對感染者及一般民衆之意義

莊苹(Peing Chuang) ； 劉仲冬(Chung-Tung Liu)

《護理研究》 5卷1期 (1997/02) Pp. 52-64

https://doi.org/10.7081/NR.199702.0052

摘要

爲瞭解國內社會烙印對HIV感染者及AIDS患者的影響，藉以促使醫護人員及社會大衆對感染者們有更多認識及接納。本研究以人種誌研究法(ethnography)自83年9月至84年9年間進行田野工作，利用通信、門診陪伴、醫院訪視、電話咨詢等方式接觸HIV感染者及AIDS患者共40位。以研究日誌、訪談對話錄等方式記錄個案的行爲反應及當時情境、相關防治人員反應及研究者13個月中的見聞，分析後歸納出我國社會烙印與中國文化中的“報”、“家族取向”及“孝道”等傳統觀念的關系。另在性別議題上，除了認爲愛滋僅與“壞女人”有關外，在資源、資訊、法律等多方面也漠視女性的需要。此外，研究亦發現烙印及偏差行爲的概念對於男同性戀者及一般民衆態度等方面的影響。進而針對修法、資源資訊分配及未來研究方向提出建議。

關鍵字

愛滋病 ； 烙印 ； 中國文化 ； 性別 ； 偏差行爲

並列摘要

To understand how AIDS stigma affects PWH(persons with HIV) and PWA(persons with AIDS) and make medical professional and ordinary people have a better view of and more acceptance of them, the author did her research by ethnography on 40 subjects, including methods of correspondence, OPD assistance, hospital visits and hot-line services, over a period of 13 months from Sept. 1994 to Sept. 1995. Reseacher analyzed the data, which includes individual behaviors, responses, situations and related professional personnel's responses, recorded in the diary and interview records, and found that the stigma is profoundly related to the traditional Chinese ideology of retribution, family orientation and filial pioty. There is also evidence of gender-discrimination here. Not only are female PWHs and PWAs connected only with ”bad girls”, but also females' needs of social resources, information and legislation are ignored. Apart from this, the stigma and deviance which affects gay and others is also discussed in this article. Finally, the author makes some suggestions for the revision of laws, the re-allocation of social resources/information and directions for future research.

並列關鍵字

HIV ； AIDS ； stigma ； Chinese culture ； gender ； deviance