癌症復發病患之生命經驗

Lived Experience of Patients with Cancer Recurrence

謝旭玲(Hsu-Ling Hsieh)

指導教授 ： 周汎澔

高雄醫學大學/護理學院/護理學系研究所/碩士(2004年)

摘要

本研究目的在於瞭解癌症病患面對疾病復發之實際經歷的經驗內容。採立意取樣法，選樣條件為醫師診斷癌症復發之20歲以上的成人病患，意識清楚且病情穩定，知道自己為癌症復發者，並且可提供深度和豐富描述之願意參與本研究者。在此研究中，生命經驗所指的是癌症復發病患於癌症復發事件的經驗內容，於訪談中針對癌症復發事件之經驗做一回溯性的訪談，透過時間與空間的不同視角，讓病人自己將整個經驗做一重整與連貫，並陳述出其感受、想法和態度。本研究依據現象學研究法以深度訪談進行資料收集，完成六位研究對象，共11次的訪談資料，運用Colazizzi（1978）的資料分析步驟進行分析。研究結果呈現出癌症復發病患之生命經驗，涵蓋了五個範疇：震懾心弦的再發現、重新抉擇就醫的掙扎、承受生命漸逝的難、振盪後的生活回歸以及生命轉彎處的看開。
透過研究結果，可以瞭解癌症復發病患的生命經驗，並可提供癌症照護領域之專業人員、病患、家屬及社會大眾，對「癌症復發」此一分期有深入的瞭解。護理人員則可利用此研究結果，重視病患個別性的問題與需求，提供癌症復發病患適切的照護活動，以滿足病患身、心、靈及社會等各方面之照護需求。而本研究結果亦可提供做為後續相關研究之背景知識與研究基礎。

關鍵字

質性研究 ； 癌症 ； 復發 ； 生命經驗 ； 現象學

並列摘要

This research is to understand cancer patients’ actual experience when encountering the recurrence of cancers. This research used the purposive sampling. Samples must be the patients who are over twenty years old conscious, and diagnosed as cancer recurrence, and have a stable state of illness. They must know that they have cancer recurrence and are willing to participate in this research and provide a deeper layer of experience description. In this research, lived experience means the experience of cancer recurrence that cancer patients have undergone. In the interviews, they are willing to give reflective recount of their cancer recurrence. Through different perspectives of time and space, the study subjects will be able to reorganize and piece together the whole experience and state their own feelings, thought and attitudes. This research took the phenomenology method to collect data via interviews in depth. There were six study subjects and eleven interviews. Colazizzi’s data analysis method was used to analyze the findings. The results showed that the lived experience of these cancer patients could classified to five categories: terror in knowing the recurrence, struggle in making decision to receive treatment again, unbearable difficulty in accepting the fact of dying, returning to normal life after the shock, and acceptance of whatever has happened at the turning point of life.
The research results showed that understanding lived experience of the cancer patients with experiences of cancer recurrence can help to provide cancer care professionals, patients, patients’ family and the public a deeper understanding of the stage of cancer recurrence. Nursing professionals can place more importance on each patient’s individual need or problem in virtue of the results of this research and therefore provide proper caring activities to the patients. This would help to meet the needs of patients in terms of physical, emotional and social aspects. The results can also offer a foundation for the future related research and background knowledge.

並列關鍵字

cancer ； recurrence ； lived experience ； phenomenology ； qualitative research

參考文獻

胡月娟（1994）．慢性病患者所承受的衝擊與因應行為．護理研究，2（2），140-152。

畢恆達（1995）．生活經驗研究的反省：詮釋學的觀點．本土心理學研究，4，224-259。

中文部分

毛新春（1997）．認識病人的靈性需求．臺灣醫學，1（5），653-656。

行政院衛生署（2003，6月12日）．台灣地區縣市死因統計結果．行政院衛生署衛生統計資訊網．取自http://www.doh.gov.tw/statistic/index.htm